Any one out there caring for a spouse with a traumatic brain injury?
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My dad had a girlfriend a while back that has a brother with an inflicted brain injury causing severe mental incapacity and loss of function. She told me about going to groups, and how she found out about how to deal with caring for her brother under such conditions. One of her sources of info was a group she found on the web years ago, since dissolved. Here are a few other options. Good luck, blessed Be.
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i do not have a spouse or family member in that situation, but i work in hospice, and have worked in many nursing homes. the best advice i can give you is to contact your local hospitals and ask for info regarding hospice care (which should be free), where they would send a caregiver who is trained in helping you to cope, or, if it is not a terminal situation, perhaps inquire about any support groups, which are sponsored by many hospitals
This is a very difficult situation because the personality of the person you love and care for is different.
My brother was quadriplegic and that was so hard, but he had his mind which made it soo much easier.
I guess my main advice is to know that an altered mind does not make a person not a person. Those with head injury will respond to singing and songs better than to just talking. The extent of the injury can't be known for years, so be patient.
Usually you can learn a great lesson from a person who is impaired in body or mind. Be open to this person as you would to a child, and be ready to laugh and cry with them. This is not entirely the same person you married, but they are a new partner, in some ways, so be open and wait to see what they can teach you and share with you.
Be sure to not allow yourself to become too tired in care giving. Always set aside time when you can be out and about with others by day.
My best wishes to you. You have an rewarding and trying journey ahead.
My husband has Alzheimer and that does take a lot of patience and caring. You have to try and find some support group and most of all you have to learn to take care of yourself. Caregivers forget that as they are so busy with watching the afflicted. To stay healthy yourself to be able to give the care you have to take time off for yourself and pamper yourself once in awhile. My prayers are going with you.
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