2nd Query about post stroke rehabilitaion?
Question:
My mother is at home and unfortunately we don't have any speech therapist as such in the near vicinity of the town. Could you please guide me how I should take care of my mother in terms of Speech Therapist. From last few weeks, she will remain awake in the night and keep talking something (clearly) and start going to sleep as sun rises. We all family members are really very concern about this. We asked doctors but they get annoyed when we ask questions. I just don't know why. Anyway, I've decided to make my mother stand on her leg. Please also guide me on what all should I feed my mother through tube so her nerves get strength. Presently, she takes milk, rice paste, fruit juice and mineral water.
Your all help and suggestion is really appreciated at this difficult time.
Answers:
Coping With Stroke:
- It's Cause
- Coping With Its Effects
- Warning Signs
- Prevention
http://www.watchtower.org/library/g/1998/2/8/article_01.htm
Caregiving---Meeting the Challenge :
- The Challenge of Caregiving
- How to Deal ith Feelings
- Caring for the Caregiver--How Others Can Help
http://www.watchtower.org/library/g/1997/2/8/article_01.htm
Are You Getting Enough Sleep? :
- Sleep--Luxury or Necessity?
- How to Improve Your Sleep
- Sleepiness Test
http://www.watchtower.org/library/g/2003/3/22/article_01.htm
GOD CARES--How You Can Be Sure :
~ Is God Responsible for Our Problems?
~ God Really Cares About You!
http://www.watchtower.org/library/w/2004/7/1/article_01.htm
You'll find more info in related articles, listed upper-left of the text of the listed articles.
NOTE: Many of the URLs on that site are undergoing modification at this time ... If need be, any title can be copy-pasted into the on-site search engine at:
Your mother needs protein. Give her meat broth, soy, egg products, etc..........
She has her sleeping schedule mixed up, which is pretty normal. Slowly readjust her schedule by waking her eariler.
As for speech, work with her on pronouncing words slowly and correctly. She may never regain complete speech patterns, but the more you work with her, the better her chances will be.
Try not to get frustrated with her. It takes a long, long time for recovery.
I am a nurse who has worked in rehab for CVA victims
the main form of treatment was to make the patient do everything for herself that they can .---you start with baby steps.
this subject is incredibly complex and cannot be answered here
if s your mother is on a feeding tube try her with a teaspoon of babyfood now and again small amount on the back of her tongue and massage it down. It is possible to get some swallow back. Doctors get annoyed because they dont know the answers
. The Doctor's work is done if the patient is alive, it then comes down to people who care to do the really hard part-- getting them on their feet again
and the work goes on for 8 hours a day not half an hour here and there. So what you need then is to look in a telephone directory to find the rehab centre of a big hospital anywhere
then you ask them for advice or---WHERE YOU CAN GO TO GET ADVICE Just keep looking for help it is out there somewhere you just have to find it.
I must tell you this, Back in the days when people were admitted to rehab for up to 6 months I have seen patients a few days after a stroke coming down from the acute ward on trollies like bags of wheat-- just floppy and non responsive . and I have seen these same people six months later walking off the ward on four point sticks and it used to make me feel very good
Did you ever see Charles and Diana's wedding
her father walked her up the aisle only months after having a massive stroke. And he did it just holding on to her. Lastly it is possible that your mother does not recognise the other half of her body and all the work in the world will not fix that. Sometimes the damage is just too great. I hope for you there is something to work with .Remember ask everywhere if they know where you can go for help
Forget the doctors their work is finished now the hard part begins.
Hi, again,
Go to ASHA.org to find a speech pathologist in your area. This is the site of the American Speech Language Hearing Association, and all you have to do is put in your zip code to find someone in your area. Sometimes a therapist will see a patient privately. Or, call the hospital in your area to get a referral for a home health agency in your town. Therapists generally are not listed in the phone book unless they are in private practice. Nursing homes and hospitals always have a speech pathologist on staff, at least on a contract basis (required by law because of the Americans with Disabilities Act, i.e. ADA).
Yes, drooling is something to be concerned about. A patient who can't control saliva is at higher risk for food and liquid going into the lungs (aspiration). You can imagine that if it's coming out the front, there is poor insight by the patient, poor tongue and lip control, which affects the control of a wad (bolus) of food or liquid, which will spill into the trachea, and then into the lungs.
There are many tube-feeding formulas available, such as Ensure, Boost, Pulmocare, and Glucerna (for diabetics). Some pharmacies carry a generic. The recommended amount is six cans a day for women, and eight for men. You should give her 150cc water after feeding in order to flush the tube; this will keep the tube from clogging. If you give her what you say you are, she will not get adequate protein, (which she needs to get stronger), and you run the risk of clogging up the tube.
The staying up all night shows that she has her diurnal (day and night rhythm) confused. If it starts when the sun goes down and her confusion gets worse, it is called "sundowner's syndrome".
If your doctor gets annoyed at your questions, you need a new doctor! It's part of his/her job to answer your questions, because communication can have a huge impact on the quality of care your mom will get.
I wouldn't try to stand your mom on her good leg, Right hemisphere strokes (left-sided weakness) affect balance, proprioception (knowing where one's body parts are in space) , and trunk control. She is likely at high risk for falls. I suggest you work on sitting on the edge of the bed ("sitting balance"), and once she can do it easily, you can work on "dynamic balance". This is done by playing catch with a medium-sized ball (10-12" in diameter) or a balloon (more advanced). It is a must that you consult a physical therapist before going beyond this point. He/she can develop a home program for you, which will help with the right progression of steps toward your mom's best outcome. The same is true for Occupational therapists, who can work on teaching her how to dress herself, transfers (from bed to chair, chair to toilet) bathing, and grooming.
I hope this helps.
Good luck!
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