Is/Has anyone here ever suffered or is suffering from trigeminal neuralgia?


My dad has it and life is really stressful at the moment, my moms on the verge of a nervous breakdown and my dads in pain alot of the time. We've had alot of complications from the doctors/hospital. Does anyone know anything that helps or would care to share their story? Thank-You.

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Answers:
My Dad has it, and has had it for about 8 years now. He is on many medications and is almost maxed out on the dosages. It is very, very painful. He had a procedure done about 6 years ago where they went in and numbed the nerve. It helped alot but that procedure only lasts a couple years, and he said it was so horribly painful having it done (they keep you awake during it), he won't have it done again. When he starts getting zapped, he can't shave, wash his face, get a haircut. He can hardly eat, because he can't chew without getting zapped. When this happens, the doc will up his meds and it takes about 10 days before the pain stops. It is a horribly painful thing to live with. My Dad is 80 years old. I feel so sorry for him. I don't know what to tell you to help your Dad. I wish I did. I know there are a few doctors around that specialize in this, but really, unless he has one of the procedures done, and it actually works for him, it's all about taking the meds. Is your Dad on meds for this? Best of luck to you

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I worked with someone that had this. (I'm prior USAF and he was a MSgt at that time). He would keep a diary of his pain episodes and how many pain meds he would take. Any kind of chronic pain syndrome is really tough on the family. If his doctor is ok or even if your dad is ok with this.have your mom go with him so that she can take a more active role and at least so that she can ask the doctor about the condition.
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