does anyone have a liver disease called primary sclerosing cholongitis? If so, can you answer this for me?
Question:
-how was it diagnosed?
-have you had or are you waiting for a transplant?
-what has been the hardest part about having this disease?
thanx in advance!
Answers:
The first link below is very informative, the second has a forum that should link you with others dealing with this disease, although it is based in the UK. The third is listed because your disease seems to occur frequently with ulcerative colitis, and the Crohn's Colitis organizations are widespread and quite effective . perhaps your local branch can connect you with a support group in your area. You might also find information at your nearest transplant center.
Good for you! that you are proactive and getting yourself educated. Best wishes for your journey.
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