What are the best places for treatment for Fragile X Syndrome?
Question:
Answers:
Check out the Fragile X Foundation website http://www.fraxa.org or the National Fragile X Foundation website http://www.fragilex.org
www.fragilex.org
There is no treatment for Fragile X syndrome. It's a genetic impairment that causes developmental delays. Developmental delays require special education interventions. The child will need to have an evaluation by an agency in your area. Services can be provided in the home under age three, and depending on the service delivery model there, the child may be able to go to public school at age three. Best wishes to you.
Here are emails to two leading physicians in fragile X that may help you:
Louise Gane louise.gane@ucdmc.ucdavis.edu
Randi Hagerman randi.hagerman@ucdmc.ucdavis.e. (she helped find it with her husband back in the 80's or 90's)
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