I was diagnosed with a cyst in my brain, near my pituitary gland, Does anyone know anything about pineal mass?


Question:
Like a site to look it up on for the questions that I have while waiting to get to the doc for it, I'd like to ask pertainent questions about this
"condition"...
any help would be appreciated, Thank you

Answers:
Columbia University has a page about pineal tumours:
http://www.cumc.columbia.edu/dept/nsg/NSGCPMC/specialties/pineal.html

You write that you have a cyst and the page mentioned above writes also about cysts: benign pineal cysts are fairly common and can be an incidental finding. They are often asymptomatic and can be followed, but surgery can be considered if there are symptoms.

However, there are also other pineal masses that can be cystic.

Another good page with plenty of information on pineal region tumours for patients can be found at http://www.cancerbackup.org.uk/Cancertype/Brain/Typesofbraintumour/Pinealregiontumours

Emedicine has also a very comprehensive page about pineal tumours, but it's directed to professionals:
http://www.emedicine.com/med/topic2911.htm

I'm 27 and a 5 year survivor of pineocytoma, a "friendly cancer" of the pineal gland. I had an operation to have it removed and then yet received 6 weeks of radiation therapy, because the tumour reached the border of the removed specimen. I've had MRI check-ups at regular intervals and so far I'm in remission. :)
My initial symptom was double vision, a pressure effect caused by the tumour. The tumour was luckily small and thus better operale.

Good luck to you! If you want to know more about my personal experience, just mail me. :)
To start, I would like to tell you that you aren't alone. Lots of people worldwide have had what you refer to as a "pineal mass."
What you have is actually, and don't panic when I tell you this... a brain tumor. There are two kinds of tumor that can affect this area of the brain, one is known as a pineocytoma. It is a slow growing type of brain tumor that occurs in or around the pineal gland... like you said, right near the pituitary gland. There is another type of tumor that can grow in this region which is called a pineoblastoma. This is a similar type of condition which grows much faster than the previous. Unfortunately the pineal region is very difficult to reach, and these tumors often cannot be removed. Depending on its cause, radiation therapy might be an option for treatment, as well as chemotherapy should the mass be malignant in nature. I would suggest reading the following article on webmd. http://www.webmd.com/content/article/5/1680_50617.htm

I wish you all the best.
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Hope this helps
I have a cyst on my pineal gland that developed after my first several months of chemo therapy. its stayed the same size for ever 4 years andhasnt caused any problems. both my radiologist and oncologist said it pretty common and rarely malignant


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