Where can i possibly ask for financial support for my son's (diagnosed w/cerebral palsy)therapy/meds expenses?

Question:

I'm asking for some foundations or private persons willing to help my little baby boy Brent. He was diagnosed with cerebral palsy when he was 5mos.old and now he is turning 1year this Aug 5. My husband and i both working but salary is not enough for what he needs. I love him very much that many who had experience like this told me non-stop therapy(rehab center or at home) and monitor medications would be a great help.But really we cannot afford those things for him.Plus he is always sick and already delayed on his vaccinations. Every therapy is worth P330 (USD6.35), 3x a week. To show sincerity to all who will help support his therapy, i'll send them receipt from the hospital containing details of his therapy,pictures& developments. He is a working miracle and a gift from God... As a mother,I will do everything, to see him grow normal and seeing him at least walk and talk in a year time.Any amount or encouragement for him and us would be highly appreciated! Thank you and God bless

Answers:
My daughter has Spastic Diplegic Cerebral Palsy, and was diagnosed at 27 months. She is 4 1/2 and doing quite well. She uses bilateral braces to aide in her walking, but she can walk without them on.

I know how hard it is to come by the extra money that is needed for equipment. You didn't mention, do you and your husband have insurance through your jobs? At Brent's young age, you should contact your local Early Intervention services as they provide FREE therapy. The evaluation and the services are 100% free. I'm not trying to discourage you, but there really is no benefit to "non-stop" therapy or rehab. Brent will thrive and make progress just fine with Physical Therapy from Early Intervention Services. The services are done in your home.

I'm not sure what state you are from, but you might qualify for Medical Assistance or Medicaid. All states vary with their requirements, but some states, like PA, do NOT base eligibility on the parents income. If a child has a permanent disability, they automatically qualify. Medical Asst. pays for co-pays not covered by insurance, prescriptions, and anything not covered by private insurance, including therapy.

I don't mean this in a bad way, but please know that no amount of rehab will ever "cure" a person with CP. I know that you want Brent to reach his full potential, and he WILL, and will most definitely go much further than any doctor will predict. But CP is a permanent injury to the brain. There is no way to correct that. It's just as important, if not more, for Brent to be a child before anything else. Running him to therapies non-stop won't change much.

If you are in need of emotional support, please visit the online support group: www.specialparent.org There are tons of people there with great information who are very friendly and caring. I hope that you'll join us. GOOD LUCK!

Other Answers:
Mom, you have my sympathy for your son's and your suffering in his already short life. You ask where you can get help with his prescriptions, have you tried contacting the manufacturer of his medication. Most pharmacuetical companies have programs where they will provide their medicine for free or for a very reduced price. I don't know if this applies in your case, as every one is different, but it can't hurt to ask.

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Where can i possibly ask for financial support for my son's (diagnosed w/cerebral palsy)therapy/meds expenses?

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