Mild Asperger's and vasovagel syncope? Best place to treat?
Question:
He’s been in and out of the hospital. Doctors say it is vasovagel syncope and are treating with beta-blockers. He’s still symptomatic. Where is the best place in the country to treat kids with Asperger’s and syncope?
His MRI (without contrast), 24-hour EEG video monitored, regular EEG, EKG, echo, cat scan, blood work, halter reading and loop monitor readings are normal. Even with high fluid and salt intake his pressure still drops when standing. His heart rate also changes. He gets dizzy and passes out if he doesn’t sit as soon as symptoms come on. Sometimes they come without position change. He is learning to get up slowly and move his arms, hands and head to get blood circulating.
We have good doctors. I just want to know if there is a hospital in the country that is well-known for treating syncope that occurs constantly. I’m not so good at online research and I am hoping people will help me.
My maternal grandfather had an AVM, treated at Stanford Medical Center. I called their office several times to get recommendations about testing needed to rule it out. They didn’t call back. Also, my son’s paternal grandfather died of a brain aneurism.
If you know someone who might be interested in helping research this topic, please copy and forward this post to the person or people.
Thank you!
Answers:
I don't know anything about Asberger's, so I may not be helpful.
I do, however, have vasovagal syncopy myself. My first known episode was when I was 11, but they didn't diagnose me until I was 20. I used to take beta blockers. I didn't like them, as they restricted my heart rate too much and I couldn't exercise.
I suggest a GOOD cardiologist is all you need for vasovagal. If they are willing to listen to you and your son - and they are willing to do a little research into the condition - you'll be fine. This is still a "new" condition and a lot of research is being done for it.
my best advice for your son to avoid seizures and fainting spells - take his medication. There is no other treatment for this condition - no surgeries, nothing else but the meds.
the other thing is to take a diary of what was going on any time he fainted, if he can remember. This will clue him into the cues that start it. For me, if I am in pain, I am gone. Broken bone, dog bites - those things make me faint right off. Other than that - low blood sugar and a combination of something that might gross me out (like talking about surgery) or standing in line on a hot day - anything that makes me slightly uncomfortable, I might go. I know my triggers now, so I avoid them. No gross talk, I always have a granola bar around or some juice to keep my blood sugar up. Your son needs to recognize his triggers to keep him from fainting. In some - simply standing up too quickly from sitting or laying down is a trigger. he can learn to avoid the triggers. I haven't had an incident in almost 2 years and I am no longer medicated, because I watch for my triggers.
I was also told that most people get vaso-vagal when they are young, and grow out of it in their late teens - early 20's. i still have it at 32, but my doc said it's pretty rare.
you're welcome
More Questions and Answers
- Has anyone experienced Menieres Disease?
- What area of the body is most frequently bit by mosquitos?
- Micro-bacterium Avian Complex - Very Serious - Anyone Know Anything About It? Too Close to Home.?
- does epidermopoetin helps wound healing?
- what is the implication of PaO2 level at 122 mmHg with O2 at 98%?
- Explain why oral glucose works in minutes for someone that has an attack of paralysis after a game of tag?
- Ive been denied ssi benefits.am a below the knee amputee,diabetic with severe depression/nuropathy what now?
- has anybody got good results with the insulin called symlin?