Super Nuclear Palsy anyone know anything?

Question:

I had a family member pass away resently from a desease called super nuclear palsy can anyone tell me anything about it?

Answers:
I have this particular disease. It is actually called Progressive Supranuclear Palsy (PSP). It is classified as one of the atypical Parkinsonisms, also known as Parkinson's Plus. Many people, as was the case with me, are originally diagnosed with Parkinson's disease, because it resembles it so much, espeially in it's early stages. Eventually (or hopefully) your neurlogist will see that your symptoms are advancing more rapidly, and the medication barely helps you, if at all. He may then do a simple eye exam where he asks you to look up and down. People with PSP do not have very much or normal movement of their eyes. The Supranuclear relates to the eyes, however I do not know much more than that. The most pronounced symptoms are a very big loss of balance, stiff joints, the cramping up of either toes, mouth, or entire body called dystonia, vision problems. Very often in late stages, the person can not feed themselves because of muscle control problems, and may need a feeding tube. The websites that the other Answerers gave you will elaborate on what I've mentioned, plus add so much more info to your undestanding of this terrible disease. The usual cause for death is choking on food, pneumonia from food "going down the wrong pipe" a bit too often, or from a bad fall. Also some of the other problems that I suffer from are a weak, mumbly voice, inability to write (dystonia), tremendous slowness to my movement, and depression. The average person with PSP might live 6-10 years from the onset (don't know what criteria determines the onset), but some such as, god willing myself, can live for many more years!!

Other Answers:
Hi Dixie,

I think you are looking for Supranuclear Palsy so try these websites for help / advice along with Q and A:

http://www.psp.org/
http://news.bbc.co.uk/1/hi/health/medical_notes/461557.stm
http://www.ninds.nih.gov/disorders/psp/detail_psp.htm http://www.psp.org/what_psp.asp

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Super Nuclear Palsy anyone know anything?

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