Who & where are the best doctors & hospitals for lupus and Mixed Connective Tissue Disease (MCTD)?

Question: I have been diagnosed with first, MCTD, then, Lupus. Three years it caused an infection in my heart that left me with a moderate aortic vaulve leak. My skin is badly mottled and has constant rashes and sores. I have headaches, muscle pain, and joint pain. I am on Plaquenil Tabs 200 mg 2x a day, Skelaxin-800 1x day, Etodolac 500 mg 2x a day, Allegra 180 mg 1x day, Celcept 500 3x a day, Clobetasol Propionate Cream 0.05% 2x, Folic Acid 1 mg 5tabs daily plus additional meds for heart, hypothyroid, depression and sleep. Want to be more functional with less pain and less skin problems.

Answers:
You don't say what state you are in so I have included a link to the Lupus Foundation of America. The have local chapters which will direct you to doctors.

Also, a good lupus blog or chat room will have people discussing both their good and bad experiences with doctors. You might be able to exchange with a person in your area.

Call your local hospital and see if they have any lupus support groups.

Good luck with your treatments.

Other Answers:
Massachusetts has some of the best doctors in the United States. I live in Rhode Island and I will always keep my doctors in Mass.

---

I don't know but what you can do is ask around and maybe somebody would help you with your situation that you have.

---

---

More Questions and Answers

• ACID REFLUX, does anyone have it as bad as I do? If so.?
• i have 2 stomach ulcers and liver damage,what kind of over the counter pain medication can i take?
• Where can you get parasites?
• Do you have rosacea? Perhaps I am not spelling it correctly.?
• Preventive medicine for hypo/hyper thyroidism?
• i had fever and rash..my doctor told me that i have syphlis! secondary stage..is it risky?
• I'm itchy all over, a hurting itch, what is this?
• since flue have been in our planet for million's of years how come our great scientist have not a cure for it