I have progressive Multiple Sclerosis. Asked Neurologist about the pain.?
Question:
Answers:
Sooooo sorry if I pound my fist on the table and you hear it - it's just my frustration with any IDIOT who tells someone that there is NO PAIN WITH MS!!! BULL S**T is what I say to that!!
First of all, here are my qualifications for providing you with this answer:
1) I've successfully managed the symptoms of MS for over 45 years.
2) I was an HR Executive for over 30+ years, and combined my professional and personal expertise in creating a website dedicated to assisting folks with "chronic disease symptoms" better document, communicate, corroborate, and manage their symptoms and the resulting impairments to become expert patients; chronic disease self-managers; and, partner with their doctors to practice patient-centered health care.
http://www.disabilitykey.com
My website contains tons of information in 2 blogs, downloadable free articles and self-help ebooklets, and the Disabilitykey Workbook which contains over 100 pages of how to processes and actual forms - blank and completed examples - to assist folks. This workbook is available for a very small price (under $10).
Here's a blog that I did that discusses not only the top 22 MS symptoms, but what - at least a year ago - were the top medications used to help you better manage those symptoms. The reason that I like this list of symptoms and their associated "management aids" is that precisely because MS has so many symptoms, you may need to take some time to do some "introspection" to figure out which TYPE of symptom do you haave!! For example: do you have "plain vanilla" depression, or do you have depression coupled with either pain or fatigue? The management aids for the 3 different "types" of depression are different; so, the more precise and specific you can become shen documenting both your symptoms and how they impair you so that you can better inform your doctor, the better your doctor can assist you with symptom management!! Do you have pain associated with numbness; do you have pain associated with depression?
I too take Neurontin, and it helps with what I call "charlie horses", but it doesn't hold a candle to my real pain. For that I used to take Vioxx, then Bextra, and now, Celebrex.
So, your Doctor tells you that you have a disease. You know that you have symptoms that impair you in your every day life, but you want your Doctor to give you something to make the pain/symptom go away!
What is the best medication for your symptoms, for your illness? Remember, only your Doctor can help you. However, the better informed that you are about what is out there, the better you can discuss alternatives with your Doctor(s).
The following information comes from the National MS Society website. Now, most disease medication lists start with the brand name first, with the SYMPTOM that it is to address almost as an after thought. BUT, we, the patients, start with the symptom first, so that's how I have decided to sort the medications. Here goes. Products available without a prescription are so indicated (+).
Once again, this will provide you with information to discuss with your Doctor. By having options of medications for a symptom, you and your Doctor can discuss which treatment would be best for you, given your other symptoms, your specific condition, and any other factors that only your Doctor can know. And, if you do not know what the symptom means (I'm not sure that I know what "Paroxysmal itching" is) you can ask your Doctor, and learn something new!
(Please note the number of time the word "pain" is used in association with another symptom!)
Fatigue: Amantadine; Cylert; Provigil
Spasticity: Baclofen; Dantrium; Intrathecal Baclofen (ITB Therapy); Valium (muscle spasms); Zanaflex
Constipation: Mineral oil (+); Colace (Docusate (+)); Dulcolax (Bisacodyl (+)); Enemeez Mini Enema (Docusate stool softener laxative (+)); Fleet Enema (Sodium phosphate (+)); Metamucil (Psyllium hydrophilic mucilloid (+)); Phillips' Milk of Magnesia (Magnesium hydroxide (+)); Sani-Supp suppository (US) (Glycerin (+))
Erectile dysfunction: Papaverine; Cialis; Levitra; MUSE; Prostin VR; Viagra
Nausea; Vomiting; Dizziness: Antivert (US), Bonamine (Can)
Paroxysmal itching: Atarax
Disease-modifying agent: Avonex; Betaseron; Copaxone; Novantrone; Rebif;
Urinary tract infections: Bactrim; Septra; Cipro; Macrodantin
Urinary tract infections: (preventative) Hiprex, Mandelamine (US); Hip-rex, Mandelamine (Can)
Urinary tract infections (symptom relief): Pyridium
Urinary frequency: DDAVP Nasal Spray; DDAVP Tablets
Bladder dysfunction: Detrol (US); Ditropan; Ditropan XL; Oxytrol (Oxybutynin Transdermal System); Pro-Banthine; Sanctura; Vesicare (US)
Bladder dysfunction; Pain: Tofranil
Depression: Effexor; Paxil; Wellbutrin; Zoloft
Depression, Pain (neuropathic): Cymbalta
Depression; Fatigue: Prozac
Tremor: Laniazid; Nydrazid
Tremor; Pain; Spasticity: Klonopin (US), Rivotril (Can)
Acute exacerbations: Decadron; Deltasone; H.P. Acthar Gel; Solu-Medrol
Pain (dyesthesias): Dilantin; Neurontin
Pain (paresthesias): Elavil; Pamelor (US), Aventyl (Can)
Pain (trigeminal neuralgia): Tegretol
Now that you have read all 22 categories of Multiple Sclerosis symptoms that HAVE a medication that might mitigate it, and know of many others that have no associated medication, I'll bet that you are asking yourself how do I make the link between knowing that I have one or more of these, and explaining how this symptom impairs me? If you have these questions, please check out our website at http://www.disabilitykey.com.
Also, please feel free to im me or email me by clicking on my Yahoo name.
Finally, here are some suggestions:
1) Document your symptoms and their impairments.
2) use any Internet search engine and plug in the words "MS symptoms". Then you can see if you have any or all of them.
3) Then, go to see your doctor, better prepared to partner with him/her in getting you a diagnosis not only for your "condition", but for medications and/or other suggestions for "managing" your symptoms.
Finally, please feel free to contact me by clicking onto my Yahoo name and email me or im me with additional questions along your process of discovery.
Best wishes.
Don;t hesitate any longer, change doctors. Living with pain is not an option and with all the medications available for your condition your doctor sounds like he is merely an ***. It is a shame that some healthcare professionals do not take the care and consideration with thier patients that they should. If I were you I would change doctors ASAP and file a complaint against the doctor mentioned. Living with pain is never an option, and if he had ever experienced that type of pain, he wouldnt be so callous.
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