anyone have ehlers danlos?
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Answers:
I have ehlers danlos. I have type 4, which primarily affects the joints more than the skin. I do have problems with wound healing and bruising, but not as much as someone with eds that primarily affects their skin. My ankles, hips, shoulders, fingers, etc. are most effected. I used to wear leg braces, but my achilles tendons were beginning to shorten, which would permanently affect my walking, so I quit wearing them. I have severely sprained/broken both of my ankles, and constantly dislocate my shoulder and fingers.
I also have signs of other kinds of eds. I have mitral valve prolapse, and am tested every year for aortic widening. I have also lost my teeth (well, most of them.the others were pulled, and I got dentures.) This was believed to be caused by the eds, too. I am only in my thirties.
I don't know of any cures.that's the problem. I have heard that large doses of vitamin C help your connective tissue, but have not seen in differences in myself when using it.
Write back, if you want, with your email.and I will correspond privately with you.
Other Answers:
a friend of mine has a form of it. His fingers are really stretchy and he has to be careful in protecting his skin which also bruises easily. I would just be extra careful when you are outside. Wear long sleeves and gloves whenever possible. Also make sure your doctor knows about the possible heart problems to look out for. Good luck. With a bit of care you should be fine too!
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