I have just been diagnosed with meniers disease...?

Question:

Does anyone else have this, and if so how has it changed their life (if at all)?

I have an attack about once every 10 days and it is really beggining to effect my job - has anyone found any good coping mechanisms?

Answers:
An answer I previously gave....

Yes, I have Meniere's Disease. I have been in remission for quite sometime now. I take betahistine (Serc) tablets for it, though I have taken Stugeron and Stemetil in the past....doc wants me to take three a day but I only take them when I feel the need for them now, as I don't want to rely on them forever. I had my first attack when I was around seven, although nobody realised what it was till I was about 13 because children aren't supposed to get Meniere's! At that time I was getting around four or five severe attacks a week.

What is it like?...well for me whenever I had a really bad attack it was like being p*ssed out of my brain without the pleasure of the drink! I had very little balance and trying to walk was impossible. At times I was so bad that I couldn't open my eyes without throwing up as the room was just spinning faster and faster.....not a pleasant sensation. Nowadays I just tend to get "light headed" and I know to take it easy or I will make myself worse. Sadly it does tend to have an effect on hearing and I am now totally deaf in my right ear and partly deaf in my left..though it hasn't been proved that the Menieres is totally responsible for all of that. I am lucky in that I don't get a lot of tinnitus (ringing in the ears) which a lot of sufferers do, so I can be thankful for that! I also have something that is known as recruitment, which is when you start to hear and when what you are hearing becomes unbearable to hear...this link can explain it better than I can...
http://www.hearinglosshelp.com/articles/...

Not sure which country you are in but here in the UK there is the Meniere's Society which offers suppoort to people who are diagnosed with this prob.....
http://www.menieres.co.uk/

I have had Meniere's for most of my life and I am in my mid fifties now. I know that I will never be rid of this blight, but hopefully I will stay in remission and my hearing will get no worse.....I have also learnt that a positive attitude helps a lot when dealing with this...

If you type Meniere's Disease into the "search for questions" box you will find that this question has been asked before and there is a lot of advice in the answers.

Never had the disease, but have suffered vertigo and tinitis.
Not sure where you live but try
http://www.mduk.org/index.php for other people with your disease.

I have this and it has effected everything. The attacks come out of nowhere, I have no control over them and no warning.

There are some things that I do to try to prevent them...like watch my salt intake (fluid messes up the inner ear) and watch my caffiene. When I get attack, and I pray it isn't when I am driving (it has gotten to the point where I will not drive much because of it) or somewhere else where I can't stop and lay down, I take a meclizine and a xanax to deaden the nerve and lay down. If that doesn't work I take a Valium and sleep it off. Sometimes if I am getting a cold I will take a little sudafed to clear my sinuses out to relieve the pressure.

I did find out in the process I have a clotting disorder called APS and since being on Coumadin and aspirin much of the vertigo has gotten better. Before that I had to take lasix to keep the fluid off my ear.

As far as coping...I don't think I will ever fully cope with it...I just deal with it as best as I can. What does the ENT doc say?

my friend had it for about 3 yrs....nothing gave her releif from it .....and she tried everything.....motion pills made her sick .....and other treatments did not work either ......it eventually got to a point where she could not function at all .... she had surgery to repair it the surgery was not espcially difficult for her ....she has had no problems since the surgery which was about 10 yrs. ago and has had no further symptoms.

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I have just been diagnosed with meniers disease...?

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