I was just diagnosed with Interstitial cystitis, what should i expect from it?


Question:
I just got dianosed with IC and I am on a medicine that i take 2 pills twice a day and they also put me on another medication that makes me tired but i had to quit taking it because it makes me very tired...I would like to know what other medicines are out there for this condition. And i also would like to know if it gets worse or really effects every day life.

Answers:
I have it too. (Isn't it the pits?)

It took a long time for me to get a diagnosis - and in the meantime I was really suffering - going to the bathroom 20 times a day, and had so much pain afterward I just wanted to go to bed.

I've heard Elmiron is good but haven't tried it. My doctor recently put me on generic Pamelor (50 mg.) (it's a tri-cyclic antidepressant that also provides pain relief for IC) and I am currently pain free for the first time in years. :-)

I don't know if IC is progressive or not. Try to learn what foods if any, trigger your pain, and avoid them. I had to stop drinking soda. And hot spicy foods are often irritating to me

There's a good web site www.ichelp.org You may find some of the answers you need there.

Good luck. I hope you feel better. Hugs!
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