I have Ehlers danlos syndrome, a connective tissue illness?

Question: I have been to 4 states, e mialed several large clinics and gotten into a study, then had a sample sent to Dna lab.
It came back inconcusive. All seem to think they are sure of one thing, I have connective tissue illness but some say Vascular E.D.S, others say , marfans, others none but from the surgery was caused by a car wreck that I'd had one year before.
I had a complete dissecction of the main aorta, a root replacement, and then was re-opened and had a valve replacement.
11 hours of surgery, code blued once, 28 days in intensive care , in the heart ward.

I am getting worst, I have located a doctor in Baltimore, Marilyn who is a specialist in Connective tissue illnesses.
If you have any info for me, please ask.
thanks judee

Answers:
http://dailystrength.org/support/skin_ha...
heres a community with the same thing u can chat with them
here i just look this up to but i dont know if it will be any help
http://www.maimonidesmed.org/body.cfm?id... numbers on the site.
what u can do to find more info is use the search engines.good luck

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