My son has Hirchsprungs disease he can live a normal life with treatment .very exspensive thou?


Question:
Hirschsprung's disease, or congenital aganglionic megacolon, involves an enlargement of the colon, caused by bowel obstruction resulting from an aganglionic section of bowel (the normal enteric nerves are absent) that starts at the anus and progresses upwards. The length of bowel that is affected varies but seldom stretches for more than a foot or so.




What I need to know about Hirschsprung's Disease
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What is Hirschsprung's disease?
Why does HD cause constipation?
What causes HD?
If I have more children, will they have HD too?
What are the symptoms?
How does the doctor find out if HD is the problem?
What is the treatment?
What will my child's life be like after surgery?
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Glossary
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Acknowledgments
What is Hirschsprung's disease?
disease of the large intestine.
medical suppy can be very exspensive
and medical does not cover most of his supplies
looking to find help with medical supplies please

Answers:
I'm not real sure what you're asking.

Has your son had a bowel resection?
Gastostromy tube?

My son has had both, and it has only a minimal effect on his life.
Supplies and special food are EXTEMELY expensive. Many insurance policies do cover these, though. If yours doesn't -- and you live in the U.S. -- consider applying for Medicaid coverage for your son, under the disability category. Medicaid will pay for everything to be delivered to your house at regular intervals.
You need more help than anyone here can give to you
I have enclosed some web sites for you to do the research yourself.
Find a Hirschsprungs support group in your area and they can guide you in the financial aspects.
Good luck
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