Hi, what do people think of capaxone injections treating multiple sclerosis?
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I have never heard of oxygen treatment. I have had MS for twenty years but I was only diagnosed five years ago. I took Copaxone for three years. I then switched to LDN (low dose Naltrexone) and found it to be absolutely fabulous. It is far better than the FDA approved drugs and actually does alleviate symptoms which is something that Copaxone does not do at all. Copaxone supposedly cuts down on the number of exacerbations but when I got the efficacy study from the makers of that drug I noticed that the drug is only effective for about 50% of the people who take it. The makers of Copaxone do not claim that it will do anything for the symptoms because it does nothing and neither do any of the other CRAB drugs (the drugs that the FDA approves for treatment of MS). I suggest you go to a site called remedyfind.com where patients rate their satisfaction with various treatments and then go to LDN.org. To keep abreast of news in the MS community join the National MS Society and go to your local support meeting. There you will find friendship and information about all the options for MS sufferers. The interferones can play havoc with your health and well being. Just make sure you get a balanced view of any medication you are going to take by talking to lots of people with MS. The drug companies will do anything to take your money and will not give you a balanced picture of their drugs. Best of luck to you.
I think if the injection has thimerosal, you can do more damage than good. Do a search on mercury and MS, and also read up on Andrew Cutler and MS.
I don't know what kind of oxygen treatment you are reffering to, but I have read up on HBOT (hyperbaric oxygen treatment), and it has had good effects on MS. BUt, I would get the mercury content checked in your brain, cause that can cause MS. That's where Andrew Cutler comes into play. There is a yahoo message board group, the adult chelation bord, you can ask questions there.
There are many treatments for the daily symptoms of MS. It really depends on which symptoms you are talking about. If you have a neurologist you trust then ask the doctor what works the best. But, above all, educate yourself by reading as much as you can about MS. There are in person support groups you can join through your local chapter of the National MS Society. If you haven't registered with the NMSS, please do so. They have information packets available for newly diagnosed. There are also some good online support groups at Yahoo such as MSersHEALTH and MSersLife. I run both of those groups. We have a lot of information and resources available at both groups. I don't know anything about oxygen treatment. My best advice is to get started and stay on a disease modifying drug, depending on what type of MS you have.
Good luck!
Sharon
Hello, I have had MS for many years. I agree with Sharon, do your homework and find the MS drug that is right for you.They all have their own advantages and disadvantages.
Avonex is taken once a week. It is an IM injection(in the muscle) so the needle is a bit bigger and more painful for some. It can also be a bit harder to tolerate with flu like symptoms for a day or two after your injection.
Betaseron and Rebiff are both injected about 3 times a week and are both fairly easy to tolerate. I had mild flu-like symptoms with only the first 2 or 3 injections (betaseron), with the main side affect being mild injection site redness.They are delivered subQ( just below the skin) so the needle is much smaller and for many more comfortable. There is also an autoject made for the syringes. the autoject was developed for children and needle squeemish people and makes the injections a snap !
Copaxone is injected everyday and is considered the most easily tolerated of the injectables. It is also delivered subQ and an autoject is available.
I remember how afraid I was of the injections, I didnt think I would ever be able to give myself a shot 3 times a week, but we do what we have to and really the discomfort only lasts a few seconds . I think that the benefits way our way the discomforts
http://www.copaxone.com/
http://www.betaseron.com/
http://www.mslifelines.com/new.jsp?intcm...
http://www.avonex.com/msavproject/avonex...
I have to report quite the contrary regarding Copaxone. I am a single-flare up patient (meaning that I only had one flare-up and an MRI to confirm my diagnosis). I've been on Copaxone for a year, and my annual MRI showed no new lesions, and no active lesions.
Which is exactly what Copaxone is supposed to do.
It is not supposed to stop your relapses. It *is* supposed to increase the amount of time between relapses and decrease their severity. It is supposed to slow down the disease progression by slowing down the rate of lesion formation and reducing the number of active lesions.
It does indeed do all of those things. However, as someone else pointed out, all of the CRAB drugs do these things as well. For some people, one of the drugs works better than another. For others, the side effects are too much to deal with to use anything but the synthetic (Copaxone). It really comes down to personal preference
But let me strongly advise you to work with your neurologist and, if you're going to use an alternative therapy, use it in conjunction with a CRAB drug. NONE (not even LDN) of the other alternative therapies is proven to slow the progression of the disease. While LDN and other treatments may help with the flare ups, taking it as the sole remedy allows the disease to progress at its normal pace. Eventually, LDN will not be able to stop all the symptoms, as there will be too many and they will be too far along.
Remember that the most conservative approach to treatment is to "conserve" as much nerve tissue as possible. Only by slowing down the progression of the disease can you accomplish that goal. While symptom management is important, don't use it in lieu of managing the central issue with the disease, The iceberg theory applies here. The symptoms are only the part of the iceberg that you see out of the top of the water, about 10%. The other 90% is under the water. That's the cause of the symptoms. Don't overlook treating the cause while you're treating the symptoms.
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