For anyone who knows about lupus?
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I have lupus with organ involvement. Lupus is like a fingerprint, it is never the same in any two people. Some people have organ involvement which can be life threatening. While others may suffer only mild symptoms like joint pain and fevers. It usually takes many years to get a correct diagnosis because the disease immitates so many other things and sometimes in the process people get labeled lazy, hypochondriac or crazy. If you want to talk with people real people who have lupus I strongly suggest joining Lupies, a lupus support group on yahoo groups. You will find a wealth of information and support. Joining that group has literally saved my life. Its a complicated disease and knowledge is power. This group can help you through this process. I strongly recommend this powerhouse of generous men and women who dedicate much of their lives trying to help educate while also being a sounding board for the fear, frustration, and uncertainly of this disease process. It is the very best advise I have. I wish you the best as you face the great imitator known as lupus.
Ask a doctor maybe?
And to quote House, "Well at least it isn't lupus."
My sister has lupus, and I have it in my blood but it is not fully
doing the same as my sisters. She has swelling in her hands, and also has big red blotches on her neck and face and arms.
It gets so bad with pain all over her body that she has to see her Doctor for a steroid shot, she gets these shots at least once a mt. It is a inherited disease.
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