Has anyone ever been so sick you can hardly function & nobody in your family believed you or seemed to care?
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First of all, I am really sorry that you are going through this. It just isn't fair. It is bad enough to have something wrong with you and not get any support or understanding from those who care about you. I completely understand what you are going through and what you feel.
I may have different medical problems but the feeling of abandonment and lack of support is the same. I suffer from several medical conditions and am now disabled because of them. It doesn't matter how old you are or what you have because I have seen this happen to everyone. All those who suffer from chronic pain, etc. go through this period of having those in their lives not understand them and what they are going through. I belong to a chronic pain support group that has helped me tremendously and I think it could also help you. It offers you a safe place to vent, to reach out to others who understand. Mine is all women b/c of our medical condition so I don't have to worry about my fiance getting jealous or anything like that. But what drove me to a support group was the fact that I was hearing those same comments from him and family and friends. It was breaking my heart.
There is this thing called "The Spoon Theory" and it really helps to explain to others what we are going through. For them to be a little more patient and understanding. This isn't our fault or our choice. We are sick. I believe you can find it at www.youdontlooksick.com It is written by someone with Lupus I believe but it applies to any medical illness(es). I do hope it helps you honey.
In your case, you really need to find some answers because this is not normal. I sincerely recommend you make another appointment to see the doctor asap. Loss of hair could indicate some type of poisoning in your body; like high levels of mercury or too much of a certain hormone. Things that happen when we are ill. Your pain and shortness of breath is also a big concern. I really hope you will make another appt. and go right away. You need to put your health in first place. Otherwise, how can you be there for everyone else?
Perhaps you could have a 'heart to heart' with your husband. Explain to him how you feel both physically and emotionally with how he's been acting. Explain this isn't a choice or something you are deciding to do by not being able to do things around the house like you were before. Look for a way to relate it to him, so he can see it from his point of view and yours. Ask for patience and understanding while you try to get answers as to what is going on in your body. You will really need to keep communicating with him so it doesn't get worse because it will take a while for the doctors to figure out what is going on with you. You need to stay strong and DO NOT GIVE UP! Hang in there because you will get through this. I promise you.
I am sending you lots of prayers and am hoping you find out what is wrong soon. I understand. You are not alone.
no 2 points
i have the same problem...been having health problems for years but they aren't obvious like pneumonia so family doesnt believe me most of the time
ive cried quite a few times from being weak and feeling helpless cuz no one cared or thought anything was wrong with me
i know how you feel..get this...i once was home with a 102-103 fever and couldnt get up..really delerious ..this is think was a friday and my mother took my little brother and went out to dinner with her friends leaving me home all alone..and i couldnt get up..imagine if i fell trying to get something to drink or trying to get to the bathroom..it wasnt cool
The fact that you're more into others thoughts on your mysterious illness than you are about getting to the doctor speaks volumes as to why some of the people around you may not be taking it that serious. Screw attention and screw a doctor appointment, those are very serious symptoms and if you don't get immediate care it may be too late very soon.
I have never had this occur to me. However, it happend to my mother about two years ago. I was still living at home with them at the time and she would occasionally complain of headaches. Her headaches got worse over a period of about two years until she finally laid down in her bed for three straight days without getting up. My dad, brothers and I had become so used to her complaining about headaches that we believed that she would be ok and it would pass like the other ones.
However, my grandmother finally came and got her and took her to the hospital. They did a cat scan of her brain and found a massive tumor on her celebellum. My dad passed out in the hospital when he heard it.
That was two years ago and since the removal of that huge tumor, she has done much better. However, my family and I learned a huge lesson that day and never took her unseriouslly again.
I think sometimes people in families make a huge fallacy of brushing others of until something extreme occurs. It seems like your family members are jsut actting like it's a phase and that you'l get through it, just like my dad and i did. If I were you, I'd call an ambulance and have them pick you up.
There is no reason for people to be selfish like peope can be sometimes. i have been the selfish one before and storngly regret doing it. I feel horrible that I had to have my mom's headaches validated before I acted and felt true compassion for her problems. I would say you really need to go to the hospital and see what is going on!
I have also been the crippled one in the family(tore out both knees, almost died from an organ exploding) and being the weak one in the family can be trying for everyone in the family. While your husband is being cruel, and I know you're in a horrible situation, think about how he still has to go to work and now he has to come back and also care for you. When someone becomes sick in a family, it puts an entirely new amount of stress on the fabrics of the family.
People are so selfish! It sounds like you have mercury poisoning or some other toxic substance in your system. Make sure that when you see the doctor, they test for toxic substances in your system. Other than that, just stay in bed as long as you need to. If anyone doesn't like it, tell them where to go!
Yes, I have been there. What you describe frightens me for you. Go to the phone...call 911 & tell them you need help & to call an ambulance to take you to the emergency room. Go immediately & do not worry what others may think or say. This is your LIFE we are talking about. It is imperative that you get help & get it immediately.
PS..My husband very nearly let me kill myself b/c he did not think I was sick seriously. He let me lie on the couch for 2 weeks w/o so much as offering me a glass of water. I have since been in the hospital 14 times but am doing so much better now. Needless to say we divorced...but he is deceased now. The good news is that I no longer have to go to the hospital & his family still accepts me as a member of
the family. That says a lot.
Please...get the help you need. Right now you have to think about yourself & not about others. When you get better, then you can be concerned about others.
Blessings, Nala
I can relate to your situation.. Not knowing I had MS and Fibromyalgia for years but knowing something was wrong with me..I spent countless hours and money on trying to get answers to why I was feeling so horrible.. even my husband and family accused me of being a hypochondriac which I wasn't ..Dr's. told me ai was just depressed and needed to go on antidepressants. after much frustration and telling all who doubted me that they would eat crow one day I finally got my answer..Unfortuantely the mystery unfolded just after I found out I was pregnant with my 5th ..I was paralyzed from the hips down for about 8 weeks! Everyone ate crow and I said I told ya so!
Don't give up on your family but please pay attention to your body because it is trying to tell you something is wrong.. Do what you have to do to find the answers ..Knowing is power and then you can look at your situation and plan around whatever is the illness.. I hope that you have something treatable so you can go on healthfully and happy..Good luck !
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