Noonan syndrome?

Question: I just found out today that our 16 month old son has noonan syndrome. It started when he was born with pulmonic Stenosis and then he had about 7 large birth marks on his body called café-au-lait spots. I dont know how to handle all of this he is my only son. I hope someone can relate to me or give me advice and support

Answers:
It isn't a syndrome I have come across in my nursing career but I have found some links which might help you.

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